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This months Zorbitz' Karma Kid, is Alexa Dectis of Allentown, Pennsylvania. Alexa was diagnosed was diagnosed with SMA Type II (SMA2) when she was 14 months old.
(SMA)Spinal Muscular Atrophy is a genetic disease in which loss of nerve cells in the spinal cord called motor neurons affects the part of the nervous system that controls voluntary muscle movement. This makes mucles weak especially in area closest to the center of the body such as the shoulders, hips, thighs and upper back.
Alexa and her parents began volunteering for the Muscular Dystrophy Association (MDA) since she was just two years old. She became the MDA State Ambassador for Pennsylvania when she was four and she has just agreed to once again be the Pennsylvania State Ambassador for 2009, which will be her 4th term. She was very excited and honored to serve in such an important position.
”Raising awareness will ultimately find a cure for neuromuscular diseases. This cure will get me out of my wheelchair and all those other kids out of their chairs,” she remarks.
Alexa's biggest passion is her musicand has written some original songs with her vocal coach, Cari Cole. She has recorded five songs and each of her songs has a lot of depth and meaning in it
In addition to her CD, Alexa enjoys acting and has made national commercials and done a variety of advertising print work. She made her soap opera debut last January, 2008, in the CBS soap Guiding Light. Even though she is extremely busy she still remains a straight A student.A |